22nd July, 2014

(via The Kiriana Conundrum)

25th June, 2014

amber-lee1124:

chronicspoonie101:

Okay I am in desperate need of HELP from someone who has Gastroparesis….. I was recently diagnose with Gastroparesis and Gastric Inertia.. EVERY TIME I eat something my stomach gets bloated to the point where I look prego (in the top pic.) It’s so painful. Sometimes I would throw up nothing but air and get a bad burning tummy ache around my belly button… They said that when I did the gastric emptying scan my food only went through 17% instead of 100% in 2 hours..
They put me on the FODMAP and Gluten Free diet. I tried that and it worked for a little bit. (Still I wasn’t going to the bathroom like I was supposed to. I know, gross…) The bottom pic shows how my stomach is SUPPOSED to look.
My GI doctor at Children’s Hospital of Philadelphia said that she can no longer help me anymore because she thinks I can get better results from their motility specialist, Dr. Boil. (I think that’s how you spell his name..
I have had the sits marker test and another test I’d rather not say. I’ve had an upper GI and they’ve given me painful enemas countless times. I’m so sick of being in pain like this..
Does anyone have any suggestions on what make them better or any advise? I feel so lost and alone with this. I’m terrified of what’s to come….
(Once again I don’t know if I’ve spelled any of those tests right lol)

I have gastroparesis. The only thing that really helps me is to eat smaller meals more often. I’ve had every test done and sometimes they’ve made the symptoms worse. I went gluten free and it didn’t do anything except make me more miserable then I already was.

I, too, have gastroparesis. Luckily mine is fairly mild. I can back up amber-lee’s advice! I’ve had all the tests done, I was extremely lucky to actually see a specialist in the same department where the motility test was invented. My advice is to avoid things that are hard to digest. It seems obvious, but seriously…avoid celery. Avoid red meat; I sometimes eat it in extremely small portions and am okay, but whenever I lose willpower and hork out I pay in spades. My biggest problem with the gastroparesis is that is seems to be causing ulcers and gastritis. When I have a flare-up of gastritis I am unable to eat at ALL for days, my longest spell was two weeks. I basically drip-fed myself from Ensure bottles to survive.Bottom line: NEVER eat a large meal. Eat frequent small meals. Avoid large portions of meat, especially red meat. Learn to love fish, because it’s one meat that my stomach seems to actually be able to use well. Try to include easily-digestible high-protein stuff in your diet like cottage cheese, or greek yoghurt. Protein is really what you need to keep you going. Another thing I love is Sunrise dessert tofu, it comes in a billion flavours, it’s high in protein and is easy eating.DO NOT EAT ANYTHING HIGH IN FAT. High-fat foods are very difficult to digest if you have gastroparesis. Say farewell to everything good in life; that is, deep-fried anything. I have had to give up french fries almost entirely, and fried chicken is a sure-fire way to cause barfage and subsequent gastritis. I am still working through the stages of grief from giving up chicken nuggets. The aforementioned cottage cheese & greek yoghurt are amazing recovery foods if you get the 0% fat versions, by the way! Mega bottom line: Eat high-protein, low-fat, easily digestible (limit red meat intake) foods for the best result. It sucks because your mouth might want pulled pork poutine, but your stomach will slaughter you if you choose to indulge.Best of luck, friend! 

amber-lee1124:

chronicspoonie101:

Okay I am in desperate need of HELP from someone who has Gastroparesis….. I was recently diagnose with Gastroparesis and Gastric Inertia.. EVERY TIME I eat something my stomach gets bloated to the point where I look prego (in the top pic.) It’s so painful. Sometimes I would throw up nothing but air and get a bad burning tummy ache around my belly button… They said that when I did the gastric emptying scan my food only went through 17% instead of 100% in 2 hours..

They put me on the FODMAP and Gluten Free diet. I tried that and it worked for a little bit. (Still I wasn’t going to the bathroom like I was supposed to. I know, gross…) The bottom pic shows how my stomach is SUPPOSED to look.

My GI doctor at Children’s Hospital of Philadelphia said that she can no longer help me anymore because she thinks I can get better results from their motility specialist, Dr. Boil. (I think that’s how you spell his name..

I have had the sits marker test and another test I’d rather not say. I’ve had an upper GI and they’ve given me painful enemas countless times. I’m so sick of being in pain like this..

Does anyone have any suggestions on what make them better or any advise? I feel so lost and alone with this. I’m terrified of what’s to come….

(Once again I don’t know if I’ve spelled any of those tests right lol)

I have gastroparesis. The only thing that really helps me is to eat smaller meals more often. I’ve had every test done and sometimes they’ve made the symptoms worse. I went gluten free and it didn’t do anything except make me more miserable then I already was.

I, too, have gastroparesis. Luckily mine is fairly mild. I can back up amber-lee’s advice! I’ve had all the tests done, I was extremely lucky to actually see a specialist in the same department where the motility test was invented. My advice is to avoid things that are hard to digest. It seems obvious, but seriously…avoid celery. Avoid red meat; I sometimes eat it in extremely small portions and am okay, but whenever I lose willpower and hork out I pay in spades. My biggest problem with the gastroparesis is that is seems to be causing ulcers and gastritis. When I have a flare-up of gastritis I am unable to eat at ALL for days, my longest spell was two weeks. I basically drip-fed myself from Ensure bottles to survive.

Bottom line: NEVER eat a large meal. Eat frequent small meals. Avoid large portions of meat, especially red meat. Learn to love fish, because it’s one meat that my stomach seems to actually be able to use well. Try to include easily-digestible high-protein stuff in your diet like cottage cheese, or greek yoghurt. Protein is really what you need to keep you going. Another thing I love is Sunrise dessert tofu, it comes in a billion flavours, it’s high in protein and is easy eating.

DO NOT EAT ANYTHING HIGH IN FAT. High-fat foods are very difficult to digest if you have gastroparesis. Say farewell to everything good in life; that is, deep-fried anything. I have had to give up french fries almost entirely, and fried chicken is a sure-fire way to cause barfage and subsequent gastritis. I am still working through the stages of grief from giving up chicken nuggets. The aforementioned cottage cheese & greek yoghurt are amazing recovery foods if you get the 0% fat versions, by the way!

Mega bottom line: Eat high-protein, low-fat, easily digestible (limit red meat intake) foods for the best result. It sucks because your mouth might want pulled pork poutine, but your stomach will slaughter you if you choose to indulge.


Best of luck, friend! 

(via to ∞ and beyond.♥)

7th June, 2014

thefantasticspastic1995:

A note to non-disabled people: If you ask people to hide symptoms of their disability because it makes you uncomfortable, you should take a step back and take a look at yourself. The problem is with you, not them, and it is you who needs to change.

(via Whip...laaaaaaaashhh)

2nd June, 2014

sabatons-and-spectrums:

snazzmaster-snuggles:

sabatons-and-spectrums:

snazzmaster-snuggles:

sabatons-and-spectrums:

I just want to collect all the metal girls on here and make a metal girl gang.

Aww yiss

I feel like we should start a tag.

I support this completely.

It is done. #metal girl gang is now a tag.

Tag your swag, tag songs and head canons, tag music recs! This stuff under #metal girl gang.

\m/ Rock on ladies.

(via A beaucoup problemo, Calvin!)

29th May, 2014

(via UnholyHeathen)

20th May, 2014

Anonymous asks:

i have aspergers and my friends had a hunch, and i recently confirmed it with them, and now whenever they are planning a group activity, i am never invited even when i am in their friend circle. all of them. they do it in front of me. i want to tell them to stop, but i cannot make the words form? they are in my head but won't come onto my tongue. they are the only friends i think i have. i do not know what to do???

autisticdrift:

Maybe they’re assuming that since you have aspergers you don’t want to socialize. I know it’s a stereotype but a lot of people think that’s the case.

Do you want to be invited? If so, you could say something like, “that sounds like fun. I’d like to go/play/join in/whatever.”  

I’ve noticed that a lot of times people within a friend circle will self-invite if they’re being overlooked or not included. It seems to be an acceptable thing to do. If your friends really didn’t want to include you, they wouldn’t tell you about the activity or plan it in front of you. 

I’m very unsure of this advice…I’ve noticed that if you self-invite, you can end up worse-off because it’s impolite for them to refuse you in such a circumstance, and then you wind up in a group activity where nobody wants you there. Or, they’ll just change plans and “forget” to text you or update you. Alternately, sometimes NT people will automatically consider you “invited” if they start making plans for something like this in your presence. It’s a dilemma.

What I would do if it’s a group of people I consider friends, is first play along and assume that because you’re friends you’re included. This omits the awkward “can I come?” line that leaves everybody uncomfortable. If they’re making plans like “oh, friday doesn’t work for me” maybe you could chime in with “Friday’s no good for me either, maybe we could do this on Thursday night” or something to that effect. Then you can gauge their response; if everyone stops talking and looks at you, I’d say they probably don’t want to invite you. Or sometimes they’ll flat-out say it, like “oh this is just Jenn and I, we’ve been meaning to get together for a while now”. What I would do if this occurs (which is purely a product of my personality, I realize not everyone is assertive/aggressive as me) is say “in future if you want to make plans that exclude others it’s usually considered polite to do so in private.” Because really, it IS rude. 

A lot of times I embrace my neurodivergence to be as blunt and assertive as possible, so that I can call NTs out on their aggravating passive-aggressive bullshit. I hate all the stupid little dances they hide behind when they’re being mean or cruel, and revel in their discomfort when I expose them in a public manner. 

(via Autistic Drift)

28th April, 2014

homesteadilee:

duskenpath:

homesteadilee:

therosebell:

Look at all the people at the meeting today. None.
#no one bothered to tell me they’re not coming except for 1 person that I knew wasn’t coming.
This is my life.

You made TEA. And you set out A FUCKING CUTE DOILY TABLE-RUNNER underneath everything, and made MUFFINS, and they didn’t show up? Ungrateful bastards!

you DISRESPECT MY TABLE RUNNER, in MY HOUSE, with MY MUFFINS

I’m not even sure why it makes me so angry that they didn’t show up to see how PRETTILY everything was laid out, but… 
/hides face in hands
therosebell I’m glad the tags amused you, something good needed to come out of this

I would go to this effing tea party, this is all up in my shit and the people that missed it don’t know JACK.

homesteadilee:

duskenpath:

homesteadilee:

therosebell:

Look at all the people at the meeting today. None.

#no one bothered to tell me they’re not coming except for 1 person that I knew wasn’t coming.

This is my life.

You made TEA. And you set out A FUCKING CUTE DOILY TABLE-RUNNER underneath everything, and made MUFFINS, and they didn’t show up? Ungrateful bastards!

you DISRESPECT MY TABLE RUNNER, in MY HOUSE, with MY MUFFINS

I’m not even sure why it makes me so angry that they didn’t show up to see how PRETTILY everything was laid out, but… 

/hides face in hands

therosebell I’m glad the tags amused you, something good needed to come out of this

I would go to this effing tea party, this is all up in my shit and the people that missed it don’t know JACK.

(Source: )

(via Where's that fourth wall, again?)

11th April, 2014

(via Jerks and Screeches)